In a candid conversation with Hoda Kotb on Today, legendary singer Céline Dion shared intimate details about her ongoing battle with stiff person syndrome. This rare autoimmune disorder has been a significant challenge for the 56-year-old icon, affecting her daily life in profound ways. One of the most startling revelations came when Céline revealed that the condition's severe spasms once caused her ribs to break.
As she described the experience to Hoda, Céline said, “I had broken ribs at one point. Sometimes, when the spasms are very intense, they can cause fractures. It’s not just about pain—it’s about the body literally seizing up in ways that are beyond your control.” Her words painted a vivid picture of the physical toll this syndrome takes on its sufferers, offering fans a deeper understanding of her journey.
The spasms, according to Céline, are more than just painful—they’re terrifying. “It’s like somebody is strangling you,” she explained. “When it happens, it feels like someone is pressing on your larynx and pharynx. It’s an intense, suffocating sensation that leaves you gasping for breath.” Her description brings the reality of living with stiff person syndrome into sharp focus, highlighting the sheer strength it takes to face such challenges every day.
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Understanding Stiff Person Syndrome
For those unfamiliar with the condition, stiff person syndrome is a rare autoimmune neurological disorder that primarily affects the central nervous system. As Céline revealed in December 2022, this condition causes muscle stiffness and painful spasms that come and go, often worsening over time. “Unfortunately, these spasms affect every aspect of my daily life,” she said in a video announcing her diagnosis. “They make walking difficult and prevent me from using my vocal cords the way I’m used to. It’s been a tough adjustment, but I’m determined to keep pushing forward.”
Life After Diagnosis: Céline's Journey
Céline’s battle with stiff person syndrome has forced her to make some difficult decisions, including canceling all her scheduled tour dates through the spring of 2024. Yet, even in the face of adversity, she remains a beacon of hope and resilience. In February 2024, she made a memorable appearance at the Grammys, where she presented the Album of the Year award alongside her eldest son, René-Charles Angélil. Her heartfelt words resonated deeply with the audience: “When I say that I’m happy to be here, I really mean it from my heart. Music is a gift that brings joy to people all over the world, and I’m grateful to be part of it.”
Despite the challenges, Céline continues to approach her future with optimism. “Celine has been performing since she was a child,” an insider shared with Life & Style. “Being on stage and connecting with her fans is what she lives for. Giving that up is unimaginable for her. While she’s not fully recovered, she’s made remarkable progress and views this as a second chance at life.”

A Legacy of Strength
Taylor Swift, the recipient of the Album of the Year award that Céline presented, shared a heartfelt moment with her backstage. The encounter underscored the mutual respect and admiration between two powerhouse artists. While Céline continues to navigate the complexities of her health, her unwavering spirit serves as a testament to her enduring legacy in the world of music and beyond.
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